Tripp Roth, from Ponchatoula, Louisiana, outlived all medical predictions during his battle with junctional epidermolysis bullosa. The two-year-old baby boy died in his mother’s arms on Saturday. Find out more on brave baby Tripp and the rare condition he suffered from here…
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Twenty-six-year-old Courtney Roth, in a blog entitled ‘EBing a Mommy,’ wrote of her son’s passing:
‘My precious angel received his wings today. I have had many nightmares about having to write this post. He was exactly 2 years and 8 months old. It happened within minutes of me picking him up out of bed and rocking him. He took his last peaceful breaths in my arms, in his most favorite spot.’
On Sunday, a motorcade drove through the small town in tribute of the little boy, as WWL TV reports.
Dozens of friends and family members organized ‘Ride for Tripp’, which grew in numbers as they drove down Ponchatoula’s Highway 22, escorted by police, red balloons reaching to the sky.
Elsewhere, messages of condolence flooded the a Facebook page paying tribute to the toddler, entitled ‘Prayers for Tripp’, where over 39,000 have followed updates on the young boy’s condition.
Courtney Roth, who took time off from her nursing career to care for her son around the clock, began her blog three months after baby Tripp was born. There, she gave insight to those unfamiliar with the life-long genetic disorder Epidermolysis bullosa, which affects 1 in 50,000 people. Tripp suffered from junctional EB, which affects around one per cent of those with the disease.
When he was born he had just one small blister on his head and a few on his back, and doctors immediately diagnosed him with the condition. Tripp was missing a protein that binds one layer to another, which meant could not even bathe without taking powerful sedatives.
He struggled with breastfeeding because of the sores in his mouth so doctors used a feeding tube instead. The condition meant any friction could cause sores and scars across his skin, his eyelids, the upper esophagus and inside his mouth. Eventually, it claimed his sight.
With no cure, doctors suggested his mother keep him wrapped in bandages to protect his delicate skin. He had not been outside for a year, and was not expected to live longer than that.
Medical experts say many babies with the condition die after developing infections or from breathing problems after blisters develop in the respiratory tract.